Sunday, September 18, 2011

Bubble Girl


One of the scariest things about having a food allergy is travelling. When I woke up with amnesia a few years ago, one of the things my mom would do was put on a movie to ease the tension. I had short term and long term memory loss, so watching a movie that had nothing to do with my real life took our minds off everything for an hour or two. One of them was called, "Bubble Boy". It was the stupidest movie ever, but I loved it. And it is how I feel a lot.

In the movie, a teenage boy is allergic to everything and so his parents keep him in a plastic bubble to protect him from having a reaction. Eventually you find out his mother kept him in there longer than necessary, BUT it was so amazing to me that a writer could understand that people like me are actually out here, living in an invisible bubble.

The bubble, for those of you who do not understand, surrounds us and stretches out to only those places where we feel safe from harm. For example: my bubble extends its curve to MacDonald's and Denny's and, presently, Montana's (not in the past), but does not even brush against Asian food places, church potlucks, or Dairy Queen. If I go into any of these places, the bubble will break and I may have an allergic reaction. So I feel I miss out on a lot, and it makes me nervous to try new things and new places.

So this returns me to my opening sentence. Travelling is hard. How much food can I pack in my backpack that will sustain me if I am in a place that only sells Asian food (i.e. I am never going to China)? If I have three epi-pens, we can speak the language, and have enough fare for a taxi, how much time does that give us to hail a taxi, and get through traffic to the hospital? And what if the hospital is full? What if they won't treat me because I'm Canadian? And what if they tell my mother? She'll NEVER let me go out again. Back in the bubble.

And what if they won't let me bring my home-baked, peanut-free, soy-free food with me over the border? What if? What if?

Then, three times in one month I have a freak allergic reaction to something right here, within my safe places. The first, sitting in a family member's chair: I broke out in itchy hives. The second, using the wrong chocolate coating: again I broke out in hives, and had swollen eyes. And the third, at a friend's house my eye started itching and swelling. Only one of those times did we know what had caused the reaction.

So, if I am reacting to unknown things within my small world anyway, why not risk it in the big world? I know the Big Guy's got my back. And those three epi-pens I ordered will come in handy. AND I'm married to the best insurance broker in the world so he's got my back, too.

And, maybe I'll just have to bake the border patrol one of my delish red velvet cakes so they let me take all of other baked goods across with me :)

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